Je suis Zohra, la maman de Maëlys qui a 7ans et demi et atteinte du syndrome d'Angelman. Je trouve cet écrit tout simplement formidable!!!! Il est vrai et naturel...........BRAVO à vous!!! On dirait que vous vous êtes mise dans la tete de cette personne et que vous avez traduit par écrit ce qu'il pensait!!!!!!!!!!!!

Il faut rendre à César ce qui est à César, ce bel article a été écrit par Pascale Gracia, qui s'implique beaucoup dans l'association des personnes avec syndrome d'Angelman, l'AFSA, et notre blog n'a fait que le relayer.
Mais l'idée que nous voulons faire passer est la même : s'adapter, écouter, prendre le temps, accompagner, pour accessibiliser la communication, tout comme on parle d'accessibilisation de la cité.
Faire en sorte de donner des mots à penser pour penser sa vie, quel que soit le moyen.
Merci pour votre commentaire !
Elisabeth Negre

bonjour

je vous informe que nous sommes désormé présent sur facebook

http://www.facebook.com/group.php?gid=110264859002933

ma fille a 2 ans rt demie et est ateint du syndrome angelman on l'a su il y a 2 mois puis avoir des commentaires

Bonjour je suis la maman d'une petite fille atteinte du syndrome d'angelman

Bonjour je suis la mamn d'une petite fille atteinte du syndrome d' angelman

Hello et merci pour l'article, je suis assez intriguée par votre article : hélas cela manque de schémas car je fonctionne avec les images. Mais sinon je suis avec attention votre blog et ne manquerai pas de revenir.... Et sinon, je possède un site internet sur le prêt à taux 0 qui permet lire la mesure du gouvernement pour augmenter l'achat d'un appartement.et je voulais vous le communiquer si jamais par hasard cela attisait votre curiosité.
Romane

Great! Merci de partager cette! C'est intéressant à lire.

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je suis la maman de mus qui a 27 mois et atteint syndrome d'angelman vraiment je me suis dessu en algerie il y'a pas de centre pour ce jore de maladie........?

bonjour je suis la maman de célia qui a 13 ans et qui est attente du syndrome d'angelman.Nous souhaiterions communiquer avec d'autres parents de cette maladie